Not sure where to put this....

Discussion in 'Chat and Banter' started by slim_boy_fat, Sep 2, 2020.

  1. slim_boy_fat
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    slim_boy_fat WARLORD Site Supporter

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    Today....well, yesterday actually [but I'm usually late to any party =|] I received news I didn't want to hear, when attending a hospital clinic. Apparently the daily chemo capsule I've been taking for three years [along with associated and assorted other drugs] is no longer working at keeping my cancer at bay, and the Consultant is changing the regime/drug(s) to another one post haste.

    So, as of next week I'll be visiting hospital 40 miles away every week to have a new drug administered by injection under the skin, following an infusion [luckily lasting c 10 minutes iirc] of another one. As far as I [or they?] can tell, it'll be weekly for 10-12 weeks[?], then fortnightly for a similar period then every month from then on. That'll be my Tuesdays mapped out for a while then....:D

    The Consultant is going to try to get these eventually done at our local [very small] hospital, subject [I think] to a suitably trained Member of staff being available. This would be much more convenient and cut out loads of travelling. He also wants a video consultation [the facility is available there, I believe] the day before I undergo treatment #5 at Raigmore hospital in Inverness, presumably to check there have been no cumulative bad side effects.

    Last night, I did a quick [and rough] mental calculation of the cost(s) associated with the chemo capsule treatment over these past three years, and the figure comes to....
    >
    >
    >
    >
    >
    wait for it....
    >
    >
    >
    >
    >
    >
    be sure you're sitting down....
    >
    >
    >
    >
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    >
    ........£325,000!

    Add to that the costs involved when I had my stem-cell transplant 71/2 years ago and I could probably be called "The Million Dollar Man" now :oops: - and that's ignoring the direct costs of all the other related drugs taken in conjunction with the chemo one, plus the consultations and all that they entailed.

    Oh well, onward and upwards! I hope that you'll understand if I become [even more :D] Grumpy in the near future as a result of these changes and make allowances....:whistling: :beers:
     
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  2. Wynne71
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    Wynne71 WARLORD Site Supporter

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    Blimey. A very stoic way to approach such a situation, admire your attitude indeed!
    And those that say our NHS system is no good clearly need to speak to you.....

    Everything crossed for a smooth treatment, as smooth as such can be.
     
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  3. Peter
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    Peter WARLORD Site Supporter

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    Hard to know what to say John.

    Must say I agree with the stoic way you are laying this out. I do hope the revised treatment works for you, and you cope with all that it entails. The schedule itself will wear you down, let alone the treatment.

    Remember, we are sounding boards, 'grumpy old man', or not. :)

    All the best, let us help you keep positive.

    Peter
     
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  4. jwilalex
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    jwilalex

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    Not so good news and ......grumpy is good, but cured is better (y)

    The NHS is a great thing and the envy of many countries.
     
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  5. Singvogel
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    Singvogel Moderator WARLORD Site Supporter

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    What else can I say but, 'Our thoughts and prayers are with you."
     
  6. snrbrtsn
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    snrbrtsn WARLORD Site Supporter

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    Thinking of you John
    The right to be grumpy has been earnt and we all respect you for that!

    Ignore the costs and maintain your righteousness, your worth it!
    Hope all goes well!
     
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  7. Peter
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    Peter WARLORD Site Supporter

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    John, just mentioned your comments to Jill.

    She sends you a "big hug". When she says 'hug', you'd not forget it. Good that it's a virtual hug! :D

    She shed a few tears, Touched a sensitive spot, understands your situation more than most can.

    Take care.

    Peter
     
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  8. The CO
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    The CO Admin

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    Grumpiness thoroughly allowed! Admire your spirit and hope goes well.

    (y)
     
  9. Mieke
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    Mieke WARLORD Site Supporter

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    John, here's hoping that the new treatment will do the job, and I hope that it's not too long before you can get the chemo done nearer to home.
    Don't worry about the money - you're worth every penny. Any time that you want a chat, you know where to come. :)

    I completely agree with your praise for our fantastic NHS. I got my money's worth after a very bad motorcycle accident - 17 broken bones, and nearly 3 months in Hospital, much of it in ITU. I don't know what the final bill came to, but I'm sure it was substantial. What was more important was the dedication and superb care from the consultants and all the staff, down to all the nurses and porters etc.

    Anyway, all our best wishes. (y)
     
  10. aldo
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    aldo

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    Crikey, it all does add up doesn’t it and how lucky we are to have the NHS.

    Fingers crossed this new injection does the trick for you.

    Keep looking on the positive side and maintain being as upbeat as you can


    Sent from my iPhone using Tapatalk Pro
     
  11. Alan Gunn
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    Alan Gunn

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    Admire your spirit John.
     
  12. idrussell
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    idrussell Site Supporter

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    As others have said I hope it all goes well and you can eventually get the treatment nearer to home. The travelling to hospital for cancer treatment is one of the most tiring aspects let alone the hassle and cost of parking when you get there. You have every right to be grumpy!
     
  13. edthefed
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    edthefed Site Supporter

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    Hope and pray all works out....and be as grumpy as you like as often as you want
     
  14. K777
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    K777 WARLORD Site Supporter

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    I am a grumpy f****r and haven't been through what you have, so you are entitled to be grumpy !
    And your a worth a million dollars on this site mate !

    Goodluck.
     
  15. rigeng
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    rigeng

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    Good luck, John.
     
  16. Jonnyg123
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    Jonnyg123 Site Supporter

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    Chin up mate


    And your within your rights to be grumpy if you want to
     
  17. Preditah
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    Preditah

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    I admire your positive outlook. Wish you all the best.
     
  18. Postman
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    Postman

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    Sunny side up John

    From one grumpy git to another....
     
  19. Kev2005
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    Kev2005 WARLORD Site Supporter Good Egg

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    Hi John,

    Sorry to hear the news, hope the new treatment works for you!

    I too echo what others have said above!

    Do keep us updated on how things are going.

    All the best!

    Kev
     
  20. Merc? No. BM!
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    Merc? No. BM! WARLORD Site Supporter

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    Try and keep up your remarkable positivity John.
    Hope you have people you can lean on when you can’t.
    Wishing you all the luck and strength with your medical regime.
     

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